Withdrawals and other fun stuff that go with GFCF

GFCF is not cheap in anyway and there is not much variety. I’ve been excited to come across new foods that say gluten free, but alas they usually contain casein. I was going out of my mind trying to figure it all out. My son was such a picky eater and I mean picky. He had maybe 3 foods he would eat at the point that we started and I worried so much that he would just refuse everything and start to starve. But I knew what these foods were doing to him and I couldn’t let that go on anymore. I had to go back to basics. Fruits, veges, meats and snacks from scratch. Not easy and it takes so much patience to work through trying all these foods to find ones that your child will eat. It’s slow going and you will constantly be worrying if they are getting enough, if they will constantly refuse to eat anything but ‘restricted foods’.

It will get better and it does get easier. The worst and –I say this with all the love in the world- most annoying part of it all is the withdrawal. They may get angrier, stim more, cry more, self injury more and when you get down to the nitty gritty, they will hunt out ‘restricted foods’ like a crackhead looking for a fix. I am not kidding. My kid hounds me when I eat bread and goes for playdoh or any not so edible thing that has gluten or casein in it. I’ve heard of kids licking the newly polished floors because they can literally smell the gluten in the wax. I’ve heard so many stories of children eating things, you would not imagine had gluten or casein in it. You have to be on constant watch; daycare, school and just being at someone else’s house could inadvertently cause an ‘infraction’.

A really good tip if you are on your way. Approximately 6hrs after an infraction you will start to notice signs. This has helped me countless times when trying to figure out what food he was ‘reacting’ to, when I started to see him ‘react’ I counted back about 6hrs and would find out what he ate. I removed the food and no more ‘reactions’.

Now on to the good stuff. If everything goes accordingly –the diet works for your child, you have made sure to remove all ‘restricted foods’ –you may not see the same improvements if you are doing a slow diet- you will start to notice some or all of the following: Less/no – headbanging, self injurious behaviour and hitting, pinching, biting of others. Less – meltdowns, headaches, stimming, stomach pains and waking up in the middle of the night screaming/crying. More – eye contact, focus, speech, awareness, interaction and imaginative play.

Now remember, you could see results right away or they could take a few months. Gluten and Casein are in many, many things so it’s good to recheck what your child is eating when you are implementing this ‘diet’. Also Remember that it’s not just about gluten free, casein has the exact same effect. Good Luck.

Warrior Mothers

Warrior Mothers

Everyday a constant battle at home, outside and online. Why? The children.

Everyday at home is like being in war. The day starts early with planning and preparation, each stage of the day checked over and all variables thought of and plan B’s, C’s and D’s ready to be implemented. Then it’s to the battlefield. Clothes carefully picked and put on according to the pre-planned stages, each step requiring constant encouragement and approval. Each morning task takes at least twice as long if not longer than the average cadet. Anything that requires an outside object, like a brush or toothpaste takes months sometimes years before that step becomes merely a civil dispute. Meals are not left out of the battles and on many occasions require more attention than anything else. Every ingredient must be checked, every new food monitored for reactions and every sensory issue, hyperactivity and just plain refusal dealt with using the book of game plans. This book, located in the brains of each warrior mother, holds all plans that have worked, failed and not yet attempted when dealing with a battle. Throughout the day warriors must face stares, comments and just plain old oppression from outsiders. Each night holds hope of rest and some days that hope comes true and other days seem endless. Online they fight for a better life for their children, for truth, justice and all that and it is a very long and extremely tiring war, that will, most likely last the majority of their life.

They don’t stop fighting, they don’t stop caring and I hope they never do because they are making change. You can call them crazy, selfish, ‘not accepting’, loud and angry. You can try every tactic you have to stop them, throw every bullshit study you can come up with to try and convince them that what they believe is wrong. But one thing you have to remember; They are mothers fighting for their children, mothers that paid attention, that saw what happened to their kids and are pissed off and tired of being told; that nothing can be done, that there is no way possible that what they saw happened and that they should accept their child for what they are now and just enjoy time with them.

They are using every bit of energy that they have, to find help for their kids. I commend them on their unending efforts to bring about change and not only help their own little ones but as many others as they possibly can. They have been working for years and instead of being called crazy, I think we should be thanking them because if not for them, then we would never hear ‘autism is treatable’, that ‘recovery is possible’ or that ‘you have a choice’. These mothers have helped so many children when everyone else had turned their backs on them. Even with all the hate that they receive, they still are out there every day, helping others, finding ways to help their children and waking up ready to do battle.

Thank you warrior mothers

You inspire us all to never stop fighting

To never give up

And that our children will not be left forgotten