Going further into the IOM report

Before we dive right into the preface, let’s count how many times the word rare is used. I count seven. Pay attention to this, it is a very sly way of downplaying things. If you haven’t kept up here it is simply; one side states that vaccines do cause reactions but very rarely, so the benefit outweighs the risk and the other side is asking for this issue to be looked at properly because what they are looking at shows, that adverse reactions are more common than we had past thought.

Since it is still in question –even after reading through this report- this is really a perfect example of how “they” are trying to constantly push that all this is rare, like winning the lottery. You may hear about it but the likelyhood of it ever happening to you is pretty slim.

 

Now there’s a lot I could nitpick about enough to fill up a couple of posts but instead I’ll just skim over them since we’ve all probably heard them several times already and we do have 667 pages to cover.

Thankfully we have a bullet system 😉

  • Vaccines being the leading cause of dwindling outbreaks/us not seeing disease much anymore is in question
  • Because we don’t see these outbreak of disease anymore and aren’t afraid of them is NOT the reason the majority choose to not vaccinate. This myth is also passed around very frequently
  • This article reviewed 12,000 peer-reviewed articles, they did not conduct any new research
    • It is interesting to note that this comes out shortly after a similar review of articles about vaccine safety, only they came to quite the opposite conclusion
    • “….some issues simply cannot be resolved with currently available epidemiologic data…in addition even very large epidemiologic studies may not detect or rule out rare events”
      • We know this already, have been saying it for years and yet the methods have not changed
      • “Some adverse events caused by vaccines are also caused by the natural infection
        • Please keep this in the back of your mind, it is very important. I’m working on a post for it but for now we should note that this only shows that some adverse events will go undetected.
        • “Alleged adverse effects that appear to be immune mediated, as many of them are, are more challenging, in part because the biology is not completely understood”
          • They proceed to go on about pre-existing conditions. These conditions that may have no ill effect on the individual if they were not vaccinated.

What you really get from this preface is that the methods for investigating adverse reaction claims cannot usually determine whether the reaction is from the vaccine or not. Add to the fact that most of the population isn’t even aware that you can report these reactions and that most doctors outwardly dismiss reaction claims and you get a whole different idea than the previous news article about this report is stating. This is not reassuring for the very rare reaction claims. It will be interesting to see if they take any action after this has made the rounds. We need better monitoring better investigation methods and better safety protocols before injection.

 

If 100,000 kids get a particular vaccine and 1,000 have reactions, the current methods would most likely determine that one or less had an actual reaction. Why? Because 300 had a pre-existing condition that without that vaccine no one would have known about or be affect by, 300 did not have enough data so was only concluded as correlation not causation and the remaining will be dismissed because it wasn’t that particular vaccine that caused the reaction but rather the accumulation of vaccine up till that point, with this last set showing visible reaction.

 

Like it or not, this is our current situation. Although the news about this report is only saying that this is a reassurance to those who are concerned for vaccine safety. So far I don’t find this reassuring at all.

Another Piece to Reassure Parents?

This swept through the lines the other day. Not surprising the “pro-vax” side is claiming another headline victory, even though they were slow to spread this. So being the curious cat that I am, I had to take a peak. Well that news article didn’t have any links to the actual “study” itself so I had to go to this one first and then finally end up here, where I could download the entire  667 pages.

Of course, before I even talk about that, I want to take a look at the first link.

The very first line “After a close review of more than 1,000 research studies” is clearly stating that they didn’t do a fresh study or even look at current reported reactions, but rather they looked at studies and papers already published. Same old information, same old news and the same old headlines. Are you to expect anything but?

“Fears that vaccines might cause autism or other health problems have led some parents to skip vaccinating their children, despite repeated reassurances from health authorities. The concerns have also forced costly reformulations of many vaccines.”

Reassurances? Nobody asked for reassurance, they asked you to look into specific problems, which we will see in your report whether they were even “reviewed”. The part about parents concerns forcing costly reformulations of vaccines is laughable. What kind of changes have been made, if you aren’t listening in the first place. Are they now claiming that Thimerosal was removed due to parental concerns? Now unless I’m mistaken (which happens 😉 The original issues and studies requested have not been met.

“We looked at more than 1,000 articles evaluating the epidemiological and biological evidence about whether vaccines cause side effects,”

So if you are reviewing articles that already say that vaccines are safe and side effects are very, very, very, very rare would you honestly expect to come to any other conclusion than vaccines are safe and effective and while side effects can happen they are very, very, very rare? Holy heck now, how many times have I read that one.

“Once again, the IOM found that the MMR vaccine does not cause autism, nor does it cause type 1 diabetes, Clayton said.”

Well that’s nice of you to re-hash information and again, fail to listen to the concerns of the people.

“The panel found that the MMR vaccine can cause seizures in people who develop high fevers after getting the vaccine, but these pass quickly.”

I’m sure all the parents of children who had their first seizure after this vaccine (among others) and continue to have seizures – some amounting +20 daily-  years later, are fuming at their computers. Of course you never did look at these children and instead you reviewed old articles.

“With the varicella vaccine against chickenpox, some people can develop brain swelling, pneumonia, hepatitis, meningitis or shingles, but this occurs most often in people with compromised immune systems.”

This one really got me. First and foremost is the dismissive nature of this statement. It’s like “ya you can get all this scary stuff but it’s as rare as winning the lottery. It does happen, just never to you. Last but not least is regarding this compromised immune system remark that keeps getting repeated and not just here but across the rest of the web. How compromised does your immune system have to be, for you to be considered at risk for any of these? Can they test beforehand for concerned patients – I say this loosely as you can get vaccines in grocery stores in some places-?

“But Clayton said this can be addressed with the requirement by doctors to have patients remain in the waiting room for 15 minutes after their shot to make sure they do not have an allergic reaction.”

A couple questions I wouldn’t mind asking someone in charge about this one.

Can you do an allergy test beforehand?

About this 15min wait time; Here – as with a lot of places- unless asked, not much information is given regarding vaccines. When getting shots personally or for their child, most people don’t know and aren’t made aware that you can even have an allergic reaction, let alone told to wait around for 15min to see if you or your child has a reaction. I agree that it should be mandated but this article made no implication that they are going to or even plan to implement it.

The second news article I was led to was overall, basically a re-hash of information but with a few extras thrown in for good measure.

“Fears that vaccines can cause various side effects have led to a decline in childhood immunization rates in recent years and a re-emergence of preventable infectious diseases such as pertussis and measles.”

Fear of side effects, is only one of the MANY  reasons why parents are choosing not to vaccinate, but the reason I chose this statement is because of the “fear mongering” that is happening. This is currently being pushed far and wide and what are we seeing happening? People are believing that children who are unvaccinated are little walking, disease spreading machines qnd that if you come into contact with one, your child will most likely catch something and possibly die. Oh my gosh! Run away from the remarkably healthy unvaxed toddlers.

Seriously though some people go as far to expel those who CHOOSE not to vaccinate, yet bring those who have been “approved by doctors, unable to be vaccinated” under their wing. Well except those who feel that they should be vaccinated anyway, reactions or not. A lot of their reasoning comes from certain “headline beliefs” like; unvaxed children spread disease that kills other children, parents choose not to vaccinate their children because of “that doctor who told everybody that mmr causes autism”, some celebrity told them to, it’s the new fad, if we fall below “herd immunity” suddenly our vaccines don’t work and diseases will not only come back but they will be epidemics and my favourite: your unvaxed kid, will give my vaxed kid a disease. The news is now pushing, to make those who choose not to vaccinate themselves and/or their children out to be the bad guys bent on destroying the world. Well maybe they don’t want to go that far but I’m sure the backlash from all this will make those who choose not to vaccinate feel that way.

It really makes me sad to see parents who choose not to vaccinate further, because they’ve witnessed their child have a reaction, be torn apart by the backlash these kind of statements have caused. Two places that I’ve found to hold the most disgusting words of inhumanity, in regards to those who do not vaccinate are from JMBC and Vaccinate You Baby. They generally believe; doctors are the ones to trust unless they question vaccines, that science and studies will show that vaccines are safe and effective and the ones that don’t are from garbage sources or people who are anti-vaccine so it doesn’t count, that unvaccinated people are making everyone else sick and killing them-vaccinated people- with disease, that it doesn’t matter if the court ruled that your child was vaccine injured and that he also has a diagnosis of autism, because the doctor didn’t diagnose it as vaccine injury so, it doesn’t count and that no matter how many claims are out there, it is never causation but only correlation.

In simple terms; vaccines are magical and if I get them I never even have to worry about disease, unless some unvaxed brat comes along with a disease that I’m vaccinated for, then I’m sure to catch it and die, killing my family and infecting my neighbourhood and city in the process. Those anti-vaxers should be booted off to an island somewhere and they can live happily spreading their diseases around, all because they were looking for someone to blame for their kids autism, when it’s just a coincidence that their kid regressed the day they got vaccinated for 7 different diseases.

This second news link also adds that, the reactions suffered can also occur in healthy individuals and not just those with compromised immune systems…..interesting.

What will most likely be passed right over in this article is this statement

“The report does not answer one of the most pressing questions regarding vaccine safety. Gardasil, a vaccine to protect against common strains of human papilloma virus that can cause cervical cancer, has been linked in isolated case reports to blood clots and even some deaths. But the report says there is not enough scientific evidence yet to determine whether HPV vaccines can cause side effects.” “”We did not find studies that were sound enough to consider to making any kind of judgement on that association,” said Dr. S. Claiborne Johnston, a committee member and professor of neurology and epidemiology at UC, San Francisco.”

So they haven’t determined either way on the HPV vaccine, yet they are still pushing it on every tween girl -and soon boy- that they can. This is very concerning. I’m sure that they will determine that this vaccine is safe and that these are all unrelated, previously had issues. That or they occur very, very, very, rarely and that you should still get it OR YOU WILL GET CANCER AND DIE!

 “The report did not explore the benefits of population-wide vaccine programs versus the costs of adverse events in some individuals. Moreover, the committee did not review the scientific evidence on whether safety profiles of various vaccines change when they are given in combinations.”

Of course they never looked at the costs. Even with their claimed oh so very rare reactions, the cost to care for those affected by adverse events, I’m sure far outweighs the current benefit of vaccination programs.

I’m going to point this out now, so everybody pay attention. Vaccines given in combinations have not been looked at. Not in this study nor any other. Period. Why is it nearly impossible then, to get a single of any vaccine. They are all combos given with one or more other combo vaccines. Seriously, why aren’t more people concerned?

One thing I must commend is that they did put 3 little statements in regards to how this “study” was lacking.

Now onto 667 pages of information, oh the fun that shall be had.

You’re a Bully, I’m a Bully, We’re All Bullies

I was cruising around the internet, surfing through Autism blogs and came across this.

I’m all for individuals/groups on the spectrum speaking out. To be honest I encourage it, since I see how much my son struggles and how hard he wishes to communicate on a higher level than he does. I’m concerned though, that some “Aspie Adults” are taking things a little too personally and a little too far. Who cares though right? Not hurting anybody.

I can’t actually agree with that. I do think it is doing some harm, in the way that it holds back research and prevents further progress from our ASD children that are way more severe than themselves.

We know nowadays that “Autism” is not simply a genetic disorder, it is not “just something that happens” or re-wiring with the brain at birth and also, that it affects more than just the brain. We also know certain areas that research should go, in order to help those already on the spectrum and also with prevention of the newly born. I agree with lots of things these “Aspie adults” are saying. There should be more acceptance of those on the spectrum, their “rights” should not be lessened or taken away because of their disability, there should be more help available to them then there is now and there should be less discrimination against them in the workplace, school and just generally out in public. These are things that everyone affected by autism in some way is fighting for as well. See, common ground. What divides us then, to the point that everyone affected by autism are fighting amongst each other?

All around the autism community-and other communities- are supporters, trolls, attackers, fence sitters and people looking for help or to help others.

This is where the supporters, attackers and trolls come into play. I did a bit of history – message/blog/thread- checking on the blog writer and it really gives this post a whole new light. The very first paragraph written in this post is clearly an attack, more of a na na na na na dare you to say something about me now piece. The writer goes on to explain how they want peace and harmony and wish to just move on and help people. Yet in almost the same sentence the writer goes on to criticize their “bullies and stalkers”.  This is not moving on. The writer goes on to accuse others for things that the writer is also known to do. So what does this have to do with preventing progress?

For starters, the time that is being taken out to go back and forth arguing between each other is time that could be spent actually advocating. –I have a very high standard for someone who wants to call themselves an advocate for something. This is part of my dislike for autism speaks. As well, this writer had brought together a huge group that wished to terminate or change the name and purpose, of another group that vows to help children on the spectrum. This is not advocacy, this is not going to help change and this is slowing down progress.

I can only hope that from this point on the writer truly does move on and put more focus on her form of advocating – sharing google news alerts, playing games on facebook, begging people to report groups / other people and complaining that she is being bullied and/or this group is about me, please don’t post your links here-  and maybe even work together with the ones she calls “bullies” to help fight for things they agree on.I don’t hold much hope however with this writer, since she doesn’t seem to have an opinion about anything but herself and being bullied. Thank you and have a good night

Withdrawals and other fun stuff that go with GFCF

GFCF is not cheap in anyway and there is not much variety. I’ve been excited to come across new foods that say gluten free, but alas they usually contain casein. I was going out of my mind trying to figure it all out. My son was such a picky eater and I mean picky. He had maybe 3 foods he would eat at the point that we started and I worried so much that he would just refuse everything and start to starve. But I knew what these foods were doing to him and I couldn’t let that go on anymore. I had to go back to basics. Fruits, veges, meats and snacks from scratch. Not easy and it takes so much patience to work through trying all these foods to find ones that your child will eat. It’s slow going and you will constantly be worrying if they are getting enough, if they will constantly refuse to eat anything but ‘restricted foods’.

It will get better and it does get easier. The worst and –I say this with all the love in the world- most annoying part of it all is the withdrawal. They may get angrier, stim more, cry more, self injury more and when you get down to the nitty gritty, they will hunt out ‘restricted foods’ like a crackhead looking for a fix. I am not kidding. My kid hounds me when I eat bread and goes for playdoh or any not so edible thing that has gluten or casein in it. I’ve heard of kids licking the newly polished floors because they can literally smell the gluten in the wax. I’ve heard so many stories of children eating things, you would not imagine had gluten or casein in it. You have to be on constant watch; daycare, school and just being at someone else’s house could inadvertently cause an ‘infraction’.

A really good tip if you are on your way. Approximately 6hrs after an infraction you will start to notice signs. This has helped me countless times when trying to figure out what food he was ‘reacting’ to, when I started to see him ‘react’ I counted back about 6hrs and would find out what he ate. I removed the food and no more ‘reactions’.

Now on to the good stuff. If everything goes accordingly –the diet works for your child, you have made sure to remove all ‘restricted foods’ –you may not see the same improvements if you are doing a slow diet- you will start to notice some or all of the following: Less/no – headbanging, self injurious behaviour and hitting, pinching, biting of others. Less – meltdowns, headaches, stimming, stomach pains and waking up in the middle of the night screaming/crying. More – eye contact, focus, speech, awareness, interaction and imaginative play.

Now remember, you could see results right away or they could take a few months. Gluten and Casein are in many, many things so it’s good to recheck what your child is eating when you are implementing this ‘diet’. Also Remember that it’s not just about gluten free, casein has the exact same effect. Good Luck.

GF/CF Getting Started

I’m sure at some point you’ve heard something about the ‘autism diet’, touted sometimes in such extremes as the miracle cure or a load of crap. As usual, somewhere in the middle is the truth. We can get right down to the science of it later but for right now let’s talk a little more personal.

Now first off, there are a few things that need to be made clear.

This may not be right for your child

You don’t have to go all hardcore about it to start

You can do tests to decide beforehand whether to start

Things will get worse before they get better

So first thing, you need to determine is whether this is right for your child. Take a week and really watch your child, there are a few things you should be watching for. WARNING: this can get a little gross.

Does your child have many, very few, or regular bowel movements?

Does your child rarely have a solid poop?

Does your child’s poop have a very rancid odor, is it very often runny, is it ‘acidy’ – burns the skin on their bottoms?

Does your child’s urine have a very strong smell?

Is your child underweight and/or have a bloated belly? (an example would be, like the children shown on those feed the children infomercials)

Does your child have a limited number of foods they will eat?

Does your child eat an abundance – a lot of or only – these foods; Pasta, milk, cheese, breads, cereal – basically any obvious milk/bread foods – an example would be a child that drinks say 10+ glasses of milk per day and only wants to eat pasta and cheese

If this is your child it would be worth it to give the diet a try. You can work at it slow or go cold turkey, but please remember that your child WILL go through withdrawals. I believe the bigger the cut out, the worse the withdrawal can be. So it could look like doing this is making it worse but please give it some time, this is a good sign. You can start out small and just remove drinking milk and then move on to removing bread and pasta. We did a trial run to know for sure after seeing all the symptoms for our son. After a week of just taking drinking milk out of his diet, he started to look us in the eye again. Not everyone will be this way but the more you take out the more results you will see and seeing is believing.

Warrior Mothers

Warrior Mothers

Everyday a constant battle at home, outside and online. Why? The children.

Everyday at home is like being in war. The day starts early with planning and preparation, each stage of the day checked over and all variables thought of and plan B’s, C’s and D’s ready to be implemented. Then it’s to the battlefield. Clothes carefully picked and put on according to the pre-planned stages, each step requiring constant encouragement and approval. Each morning task takes at least twice as long if not longer than the average cadet. Anything that requires an outside object, like a brush or toothpaste takes months sometimes years before that step becomes merely a civil dispute. Meals are not left out of the battles and on many occasions require more attention than anything else. Every ingredient must be checked, every new food monitored for reactions and every sensory issue, hyperactivity and just plain refusal dealt with using the book of game plans. This book, located in the brains of each warrior mother, holds all plans that have worked, failed and not yet attempted when dealing with a battle. Throughout the day warriors must face stares, comments and just plain old oppression from outsiders. Each night holds hope of rest and some days that hope comes true and other days seem endless. Online they fight for a better life for their children, for truth, justice and all that and it is a very long and extremely tiring war, that will, most likely last the majority of their life.

They don’t stop fighting, they don’t stop caring and I hope they never do because they are making change. You can call them crazy, selfish, ‘not accepting’, loud and angry. You can try every tactic you have to stop them, throw every bullshit study you can come up with to try and convince them that what they believe is wrong. But one thing you have to remember; They are mothers fighting for their children, mothers that paid attention, that saw what happened to their kids and are pissed off and tired of being told; that nothing can be done, that there is no way possible that what they saw happened and that they should accept their child for what they are now and just enjoy time with them.

They are using every bit of energy that they have, to find help for their kids. I commend them on their unending efforts to bring about change and not only help their own little ones but as many others as they possibly can. They have been working for years and instead of being called crazy, I think we should be thanking them because if not for them, then we would never hear ‘autism is treatable’, that ‘recovery is possible’ or that ‘you have a choice’. These mothers have helped so many children when everyone else had turned their backs on them. Even with all the hate that they receive, they still are out there every day, helping others, finding ways to help their children and waking up ready to do battle.

Thank you warrior mothers

You inspire us all to never stop fighting

To never give up

And that our children will not be left forgotten

So why are we still talking about it?

Vaccines and autism, I’m sure everyone has heard something or other regarding this topic by now and the consensus among a lot of people is the following; Vaccines don’t cause autism. So the question is; has this been thoroughly looked at? Is the discussion over?

The very simple answer is, no. So why do all these people seem to think it is?

There are many reasons why people believe that this ‘link’ has been proven nonexistent, but it all boils down to one thing, Headlines. Just do a simple Google search and you will find many, many headlines claiming that there is no vaccine/autism link or that the ‘researcher who claimed a link has been debunked, striped of his licence, ect’, great news for concerned parents everywhere right? Wrong. Firstly, without getting into the Wakefield issue – I’ll do that later- If a paper is removed, it does not necessarily mean that the concern raised in said paper has been looked at and found to be false. Secondly and perhaps most important is READ THE WHOLE STORY. Underneath the headlines you will come to find that studies have been done regarding MMR and/or Thimerosal and autism. I am not going to discuss every individual study – I can and will if need be – but there are a number of concerns that anyone who has been ‘keeping up’ can see. The most important is where is the  ‘s’ on vaccines reported in these headlines. All I keep seeing is MMR, everywhere I go its MMR this and MMR that. I’m pretty sure last time I checked, children received more than just the MMR vaccine. “But” you say “MMR was the vaccine that was claimed to be causing autism.” Now where would someone get that idea from? Could it be the thousands of headlines that appeared stating that the MMR vaccine causes autism?

The truth; every vaccine is being implicated and the concerns are not just about autism.

So is blaming vaccines the new fad? Did this just start in the last 20-30yrs? No to both, in fact parents have been claiming bodily damages caused by vaccines as long as they have been around. There is even a separate court system –we’ll get into that later – just for vaccine injury claims. VAERS is a reporting system for claims of injuries. These things the general public does not know. It is not highly publicized, rather hushed, but nevertheless still there.

The discussion is not over and everyday more and more claims are being made against vaccines. I have been to government websites, emailed them, soared across the interweb of blogs, chats, groups, newspapers, medical sites etc and still no one can provide the following studies, papers or even articles on; every – or just any other than MMR – vaccine and/or the combined schedule in relation to autism.

Time and time again I am sent links to studies not relating to the question at hand. Is something about vaccines causing more and more children to be on the spectrum? So if you have the answers please send them to me. Until then we have to ask; Are we willing to risk our children with things unanswered?