Vaccine Debate Guide: Looking for your input

In the works is a comprehensive guide to help combat vaccine and also autism falsehoods. While an extensive list of studies, quotes and information is being put in, the authors do not want to miss any information that would be helpful. So whatever studies, articles, quotes etc. that you have please help out an send them to us. We ask that any information has references with it to help confirm its validity but it is not required as the authors have staff on hand to help confirm such information. This guide I’m told, is meant to help with vaccine and autism debates so it will focus mainly on areas of discussion such as; whooping cough increases, vaccine ingredients, vaccine risks and side effects, autism rates and increases, autism gut connection, autism issues that affect the body, autism genetics and environmental, autism causes, autism treatments etc. If you have information and can help contribute, please do; the final guide will be made available free to all and will hopefully help activists and advocates on these subject have quick, reliable access to information.

We thank all who are making this possible and those who help to ensure that as much information can be put in as possible.

Please email me at jabwatchdog@live.com with your helpful information

 

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CDC: To Smoke or Not to Smoke

What has the CDC been up to lately? Well among other things they are focusing on a big anti-smoking push. It’s been a big focus, has taken up several posts, grown onto television and as usual is placed onto cigarette packaging. It’s not just the CDC however; Health Canada has joined the ranks as well.

This all seems good, on the surface at least. It’s a wonderful thing for people to be informed, to know all the possible risks; even if people feel bombarded by it. So far the only complaints that I have seen are in concern to the television commercials that CDC is airing as they are apparently very repulsive and also occur during the time that children’s programming is on. People have felt that this type of commercial should be aired much later, during more adult programming because of the content in the commercials. Health Canada has changed the packaging on cigarettes once again, in light of this new anti-smoking push, by attaching more grotesque pictures in hopes of giving more information and possibly to deter people from actually purchasing cigarettes that contain such disgusting pictures on them.

While this may have some effect from deterring people from smoking, it is a very small amount and in my opinion is a very big waste of money.  Let’s look at a before and after to compare shall we. Before this big anti-smoking push, even before the no smoking in buildings law we were taught in school what smoking cigarettes does. In kindergarten we were first made aware of the effects of smoking and we had to go through a mini-program to educate us on smoking and help us take a pact, so to speak, to never smoke. Throughout the rest of school we continuously learn about the dangers of smoking in health class and even then, there were a few commercials portraying people whose lives were put at risk or cut short because of smoking.  Cigarette packing has contained warnings for some time now and put simply we are constantly made aware of the dangers for most of our life. People who choose to smoke –remember it is a choice and not something forced upon us- know at least the majority of dangers that come from smoking cigarettes and I don’t think that this huge push is going to stop those people from smoking. It’s a big waste of money revamping something that is already doing a good job as it is.

Looking more at the current time, we have new laws in place to prohibit smoking from inside buildings and establishments; while at first having a big uproar it is essentially a good thing, especially for those who wish to attend these places and do not want to be exposed to second hand smoke. Unfortunately this isn’t where they wanted it to end. Several attempts were made to ban smoking from public areas that were outside in the open, from inside vehicles and even peoples own houses. While there was a law passed that prohibits those from smoking in a vehicle with a child (which in my opinion is a well done job) the rest were not passed and thankfully so, as it starts to creep over our independent rights.

I wonder however, if people realize the implications of what was trying to be done, if they see the darker motives behind this beautiful picture of a non-smoking society and if they truly grasp what could have happened if these laws were passed. Now, every person has a choice in their health, whether it be; what they consume, what bad habits they have and even pertaining to medical assistance. When laws like this try to pass, they do so under the guise of helping people become healthier, to protect others rights and to make our society a better, safer place to be a part of. What is seldom mentioned is that while it may be proclaimed to protect some people’s rights it also encroaches on the rights of others.

Yes smoking is harmful and can have many consequences to your health and wellbeing; but again that is your choice to make. It seems that this huge anti-smoking push is getting closer to forcefulness and is skimming the boundary between choice and mandatory. Not being able to smoke in your car, house or even at a public event would narrow the areas able to smoke to such a small amount that it would in effect force people to give it up. Sounds pretty good at first doesn’t it, but what about the rights of the smokers, are they considered so less of a human, such a danger to everyone that their rights would essentially be taken away? The other concern in this is; where does it end? If we let even the smallest of rights be stripped from us then it sets precedent, it makes it easier for other laws to be put in place and follow suit. A little bit too into the future for some but for those of us that have seen how one law passed can ease the way for another to be implemented, we can see how easy our rights can be taken away in the name of health.  Now what more could this new program do to further what has already been done? Absolutely nothing, but remind us of what we already know.

Aside from that is the money. How much money is being spent to further warn people of the dangers of smoking, how much on extra commercials, better pictures and articles is spent to plump up a program that is already doing the job it’s supposed to. We need to take an example from the heads of health care and the pharmaceutical companies that they are incorporated with.

Cost/benefit analysis.

Before any product appears on the market be it treatment, drugs, vaccines or other common medication products; companies and health care agencies first see if it is profitable.  A small but fitting example is the use of booster shots. A lot of individuals do not need to get booster shots as they are still carrying antibodies from a previous shot. This can be tested very easily and would save people being exposed to virus(es) and ingredients in said product that are not necessary. However it has been determined that this is not only far from profitable but it actually would cost too much to perform this test, especially if everyone knew about it. Instead more money would be made by simply not publishing that information on a grand scale (or even a small one) and just giving everyone booster shots.  So how would this possibly relate to the anti-smoking push? Well we would have to find out how much money is being spent and compare it to the drop in smoking rates that occur after it has been implemented. As anyone can see for themselves that drop (if there is any) is very small and in no way does it justify the amount being spent. We would then have to compare to the previous method that has been in place for a while now, to see if it has made an increased improvement on the number of people not taking up smoking and also those who have quit directly because of the methods used. I can assure you that it isn’t much difference.

So why are they doing it?

This could be the question of the decade, why does CDC and other health care organizations like Health Canada do the things they do; for the health of the people right? Well that’s what I used to think as well I mean, why else would we have an organization in charge of our health if not to help improve it? Perhaps in the beginning it started out that way and even still today, perhaps there are people who still believe that what they are pushing is indeed the ‘right thing to do, for the better of the people’, but lately this perfectly strewn veil is slowly being uncovered and the view behind it is not only shocking but just as repulsive as the new anti-smoking commercials being broadcasted by the CDC.

Giant health care organizations have stopped being about health for some time now, even before I was born has this ceased to be the case. You know that the world has gone to hell when health becomes all about profit. There is so much I could touch on here but it really does deserve its own article, so I’m just going to stick to the anti-smoking push.

Now while the motives may be entirely different from my own opinion on it, I do think that this could be a big part of it and nonetheless it should be talked about, instead of swept under the rug like every other ‘health care gone wrong’ case. In order to understand the present we must first look to the past and we don’t have to go very far to do so. When my grandmother was younger you were still able to smoke in hospitals. Today it would be a shocker. How could a health organization allow such a thing in their buildings, buildings dedicated to the health and wellness of the people? It’s not as absurd a notion as you may think.

You see, not that far into our past is a time when smoking was not only thought to have no harmful effects, but it was also believed to have numerous health benefits. It’s so ridiculous; I couldn’t even make it up. CDC had put out studies and statements that smoking did not cause cancer. Since the CDC had said so, it must be true right? Doctors advised many people to smoke including mothers who may have heavy babies; as smoking was known to lower birth rates. Ads and articles were published with headlines of doctor approved, doctors recommend and the like; just as many products are toted today. 9 out of 10 doctors agree that smoking is good for you. While this isn’t the worst atrocity made by the medical community it is a notable one, because it does set precedent.

It all starts with the studies and statements that CDC put out. If the leading health organization tells you that smoking does not cause cancer most people will outright believe it, no questions asked and when they also say that studies have been done to prove this, a huge majority of people believe it. In a perfect world why would we doubt the organization put in charge of keeping us healthy, especially with all the purported studies to back it up? Organizations like CDC are made so that we don’t have to do what they are supposed to do. They are there to figure out health and give us the results, what should be the truth.  For example, if we get sick with something we should be able to go to an offset of this organization (hospital, doctors office, health unit) and be given the information we need (diagnosis, prevention, treatment etc).  This type of organization is essentially supposed to be able to help us on a grand scale and yet; they seem to be doing a lot of harm.

So what happened; how did the organization we trusted with our health mess up so badly on this?  While there are probably numerous reasons for this the best explanation is what happens to many organizations and companies that become really big. We see it all the time with ‘fast food’ eateries. Small shops are great until they start to expand and the bigger they get; the more the quality suffers and profit becomes goal. Not only that but, the people running the place cannot look over every single thing; that is why as it grows so does the number of people involved. Nothing seems to be coordinated enough to bring about any positive. The owners of subway cannot possibly be fully aware of the actions of one subway shop in the middle of a small town, not even the number of places in one city; so how can we expect an organization so huge to be able to do more than what they can handle.

Let’s face it, the world runs on money; something we invented, can produce at will, yet never seem to have enough to go around. When something becomes profitable, the wolves show up at the door; to think otherwise is completely naïve. Just take lottery winners for instance, how many relatives and old friends suddenly make contact. It’s not some conspiracy theory where it’s all planned out to ultimately destroy the world like some comic book story; it’s just simple logic. So in the case of the smoking doesn’t cause cancer studies; those studies came straight from Tabaco companies. CDC being a grand organization at that time relies strictly on the information given to them without preforming their own unbiased studies. The organization being so big and having no one but the government and the people to keep them in check, it becomes this unregulated system that oversees a massive amount of people. It is no wonder that the smoking issue got out of hand and it seems that today CDC is trying really hard to either make up for their previous mistake or perhaps they don’t want people to remember.

In a murder case motive is a big factor, so what could possibly be CDC’s motive in trying to make people forget that they once promoted smoking as a health benefit and that doctors blindly followed suit? It’s pretty obvious actually; look at what they are seeing as a threat right now. It had struck me as odd that CDC was suddenly taking up this big campaign against smoking, smoking hasn’t been a hot button issue. So why now, when the biggest controversial topic at the moment is vaccines? How in the world could the two even be linked together?

No I am not implying in any way that smoking causes autism; that’s an absolutely ludicrous idea since the effects of smoking do not correspond to the symptoms and areas affected in autism. In order to see where it ties in, you have to head over to an area commonly misdeemed antivaxxers. There you will find that one of the points they make is that;

Previously CDC stated that cigarettes do not cause cancer and that they relied on studies done by the manufacturers of cigarettes.

CDC currently states that vaccines do not cause autism and rely on studies done by the manufacturers of vaccines.

CDC stands adamantly behind the notion that vaccines are safe, effective and benefit humanity; even going as far as attacking those who do not believe this to be true. So is it any wonder that suddenly they want to make sure that people know that they are anti-smoking; thus forgetting about their previous statements made and how that situation is identical to the one we are in now, concerning vaccines.

How many years before we find out differently, before we find out that again we were told a lie because we relied on an organization to take care of us. Every month we learn about “medications” going off the market because they do more harm than they help. We learn that the medications we take; contain side effects identical to what they are intended to fight; like diabetes medication or anti-depressants. How many oxy addicted people do we now have simply because they were given it by a doctor, someone that is supposed to be looking out for their health, who never told them of the addictive nature of the drug? We are starting to realize more and more that these products out there, that we are told will help us; are actually doing way more harm than good.

So while CDC wastes money to revamp a program that is already doing a great job, they ignore the accumulating thousands that tell of their child regressing after a vaccination; then again I don’t think the CDC understands that accumulation exists 😉

I Love Warriors

Are people sick of hearing about autism yet? I’ve been at this almost 5yrs now and still I couldn’t tire from it, then again I’m not really given that option am I. Sure those of you that aren’t affected by autism in some way (not many of those left I’m sure) are wishing for people to shut up about it already, more so I’m presuming that people are sick and tired of hearing about vaccines. Oh how I wish we could just shut up and that there was no need to be swamped by these things at every corner but it’s just not happening. So who is at fault? CDC for sticking to their ‘it’s genes, better diagnosing and more awareness’, giants like Autism Speaks that bring in millions and ignore families affected or the health system for continuously ignoring the problem.

There is a light though and it’s with all those warriors screaming and pushing for answers, solutions and action. These people eat studies for breakfast, perform therapies in their home as good as or better than the trained ones making the big $$$ and are ready for the next moment to arise when they can make some big change. Things may seem to die down a bit in the autism world but these people are constantly working, trying to change an unchecked system that has become detrimental not only to these children but to everyone.

Days like today show how on top of things these people are. First off I’d like to say that we know what the true numbers really are, if you hunt around you can find a few studies that look into more current autism rates and can give you an average estimate of 1 in 34 children. Not 1 in 34 boys, but 1 in 34 Children. But for now we have to look at published findings. Everyone (within the circle) was well aware of the CDC putting out a study to give a new autism incidence number. The thing about these people is that they know how to read studies and have probably been through hundreds already. It’s not surprising that this was easily torn apart, the study was complete bullshit and if anything was a slap in the face to families with autism everywhere. So all day a flood of information poured into the network concerning this and I cannot commend these people enough for their hard work and dedication but I am still left to ask this horrible question…..is it enough?

Is the message really getting out there to the people it should or are we just passing the information around to people who already know? I’m sure some are reached; I can’t say that all this effort is in vain but I think we really need to start thinking bigger. There really are a lot of people in this, just today an idea was brought into fruition in a matter of hours and here is one of the results of that. I could scroll through pages of people posting pictures of their children and it has only reached a small group of people. Looking at not just this but also previous endeavours, shows not only the amount of people affected and willing to speak out but also the sheer amount of determination in these people to make change.

So yes I can admit that the message is getting out there but it isn’t fast enough. 1 in 88 officially and that number is; children over 8, only taken from 14 states and the continued falsity that this is genetic and because of better diagnosing and blah blah aren’t you all sick of it already? I’m speaking to you autism families, autism fighters, aren’t you tired? An understate to say the least I know. How many hours spent researching, debating, learning therapies, learning treatments and fighting for a better life for these kids have been spent from you all? All for what, so that most still have to pay out the ass for therapies, so that treatments that actually work are not covered or even being considered, so that more parents have to hear ‘your child will never speak’ or ‘you will have to institutionalize’ or ‘your child will never feel any emotion for you’ or ‘the research has already been done’ when it’s all just not true!

We need to think bigger, grab people’s attention, make a huge impact and inform people, fully inform them. It would be nice if doctors knew the signs of a vaccine reaction and reported it every time, unfortunately this isn’t just going to happen. We need to inform the everyday individual and we need to do it oldskool J

Now hear me out before making any assumptions please.

Although we are big enough, we just cannot drop our lives to do some huge rally to demand change and even that may not be enough. With the time factor in mind I think a more Guerrilla approach is needed and would add to the impact already being made in a huge way. We can’t make time for change but we can take the time we are already using to do it.

Confused yet? I am getting to the point I swear. So there are a few things the vast majority of us all do; groceries, shopping, school, doctor, craiglist/kijiji, read the paper, go to work, just plain old walk outside. Yes the internet is an amazing resource for information but have we seriously forgotten about the old ways? Where are the days of posters on poles, notices at the corner store and flyers in mailboxes? I can’t say it’s all lost because those No Shots, No School, Not True, billboards are amazing and I do know of a few people who hand out info sheets but still it’s not big enough. So what if all of us got together and put out brochures, cards, flyers, take out ads to put information in and put things where everyday people can see. It is an easy endeavour to tack up a poster on the corkboard when visiting your local grocery store, even bigger would be dropping off a pile at the local doctor’s office or hospital waiting room. I have a few ideas on some things but would really love any input or ideas from others.  Our kids aren’t getting any younger and neither are we, we can’t wait for change to happen or for someone else to do it, we need to step it up and get the message out there. We have all this information that isn’t getting out there. I could walk up to 100 people in town and none of them will know the autism numbers, nor will they know it is treatable. Average people need to know the precautions they can take, they need to know that all is not lost, they need to know about organizations like autism speaks and above all they need to know what mainstream isn’t telling them.

So please consider this idea and hopefully in the near future I’ll be posting happy details about the project. Until then, live long and prosper ….and to you warriors, rest easy tonight, you all have done an amazing job.

jabwatchdog@live.com

It’s Not Something You’re Simply Born With

Oh Autism Speaks, how you annoy me so. I haven’t seen you in my news feed for awhile but today you have graced me with your presence. This is what they put out today and surprise, surprise it’s another piece on genetics. I have to state first of all that this illusion of prenatal testing is ridiculous. We have not pin-pointed a gene or any way to determine whether a child has autism shortly after birth or prenatally. Even though this article states that it has a test for autism, please be aware that this is just a money grabbing scheme. They know a few genes that they have pin-pointed-among the hundreds of other ‘multiple variations’ that have been claimed- that not only occur in those with autism, but those also with other disorders and regular people. If you took 100 people without autism, you will find these noted genes among them. They don’t have autism, so claiming that this test is anything but a giant ploy is ludicrous. Please know that even if they do find ‘something’ they have no treatments. They have therapies and medications that turn your child into a zombie. There are actual treatments that you can spend your money on and they will actually help as opposed to $1,500+ for them to tell you, yes here it is, now let’s make you pay for intensive therapies and pump your kid full of anti-psychotics. Go ahead if that is how you want to do things but I honestly feel sorry for the child. I have spent an immense amount less than that and in 2yrs my son has made tremendous progress, but I’m also not one to look for that easy way out, the one pill cure all that most of these parents are blindly dreaming about. It is not gonna happen; this is far too complex a disorder for a simple quick fix solution. The only quick fix is stopping the increasing number of children affected, but since no one is looking at the actual cause and too focused on genetics, this isn’t happening any time soon.

The very first line tells all, about the motives behind this organization and general researchers of autism.

“A burst of research into the genetics of autism has given scientists insight into the basis for the disorder. Now, some companies aim to capitalize on these findings by developing DNA screens that might one day provide a diagnosis at birth”

Do any of you actually believe that this research is about helping people? Look up the word ‘capitalize’ in the dictionary. This is all about $$$$. Do you honestly believe that the Down syndrome test, which is ‘offered’ repeatedly during the prenatal process, is just there because they care? They make money off of every test done and then for that second test they make thousands more. Do you think sticking a needle into your womb is free just because you don’t see the money coming out of your pocket?

Ok enough of that, you get the point. It’s all about making the dough and maybe as a side effect a possible few kids and families may be helped, but I doubt it.

“That specifically targets the developmental disorder, searching the genome for either irregular CNVs or single-nucleotide polymorphisms (SNPs) that could explain the symptoms.”

So what specific genes are named in autism because last I heard there were 100s of different possible combinations, with absolutely no chromosomal abnormalities? Are they just looking for irregular or duplicate genes and claiming autism? Can they no grasp the fact that SOMETHING has to affect these genes, these bits of DNA to change?

“These tests are not giving any answers and they are costing thousands of dollars “a microarray costs, on average, $1,500, and that’s without the bells and whistles such as doctor visits and additional gene sequencing”

These researchers are making millions looking at an end result.

“Therapies—a market that UK-based research publisher Global Data expects to top $5 billion in the US in 2018”

Why not do something productive in terms of genes and test children at birth and then after regression? Test the difference between parents who believe that their children were born with autism and those who watched their children regress after numerous vaccines.

Then this load of malarkey “These abnormalities remain difficult to detect until a child is around four years of age or older”… Really cause myself and other parents can tell you differently and correct me if I`m wrong but aren`t most children diagnosed around 18mths-2yrs old after nearly a year of actively trying to get a diagnosis. Isn`t that part of the whole vaccines don`t cause autism argument, that children are diagnosed right at the time of vaccines?

They go on and on about treatments and yet they only mention therapies. There is a huge difference and yet still many, many people –even professionals- still use the two interchangeably.

“The diagnostic holy grail is a molecular test that can pinpoint the disorder at birth to hook children into therapies straightaway”

Yes and yet after all this money spent you still have nothing, absolutely squat really. How long did it take to find out the problem with Down syndrome? If it were strictly a genetic problem, we would have no problem finding it. Before I move on I absolutely have to point out the horrific fact that our health system is absolutely burning itself alive. We can test for Down syndrome so why can’t we figure out why it’s happening? It’s like with vaccines, instead of actually addressing measles or any other, we use our ‘prevention’ methods and cross our fingers that it works and no one ever gets said disease again because we have no clue what to do when that happens. Wow we are truly f**ked, seriously over half of these parents have no idea how to take care of sick children. Look at how many are hospitalized due to dehydration…DEHYDRATION…seriously wtf, we should be teaching people what to do when they or their children become sick instead of focusing every ounce of energy into prevention and if that fails; more prevention. Here take this vaccine and you’ll never have to worry about your child getting sick ever again. Yes I am fully aware that this is not word for word what they are saying; I am however equally aware that this is the mindset people are getting because of the message that is being delivered. Don’t believe me, look at the flu shot. Beside the fact that we’ve seen the studies showing this vaccine to be pointless in preventing the flu and only reducing symptoms by %4, the message is ‘don’t wanna get sick and miss work, school etc. Get the flu shot, save your life and others’. So people go on down to Walgreens, the grocery store or wherever they are putting these disgusting stands and get their shot with full thinking that they are not going to get sick. A few days late they have the full blown flu and have absolutely no idea what to do because all they were told was get this and don’t get sick; no one says what you should do if you actually do get sick cause no one gets sick anymore because we have these wonderful magical vaccines right?

So moving on to thee best part of the article…
“We think that 80–90% of what causes autism is really the genetics. But pinning down the genetic cause of autism has been difficult. Known mutations comprise fewer than 20% of all cases of ASD’s”

These guys really have alot of nerve don’t they? They can only find known mutations –none specified, hell -none is ever specified- in less than 20% yet they, in basically the same sentence they try and claim that 80-90% of what causes autism is genetically based. It will take you a hundred years and you still won’t be able to prove that statement, that very poor assumption. If you just look at the increase you will see that 80-90% of what causes autism is ‘outward influence’ and if you close your eyes really, really hard…….you can hear the doctors whisper in your ear that it’s all genetics, you parent are to blame with your poor genes and choice in poor gened mate because he read an article somewhere 5 yrs ago.

Oh but my uncle, grandfather, parent or other has it, I think. Interesting that you can now diagnose everyone including Bill Gates to fit this idea laid out before you. Instead of nodding your head and thinking fondly of the quirky uncle on your mom’s side, why don’t you actually take a look? Maybe it’s all malarkey, maybe just maybe they came into the same situation as your child and what causes their autism is the same. Who the heck is to say, certainly not me because while my family – both side- are insane, quirky, do things other people would never have the balls to do type of people, none have autism, none flap their hands when they get excited, all of them speak and they do not have anything close to the physical issues my son has. Now I’m not saying that every autism is like my sons, not every child has autism because of vaccines- since the issue is much deeper than that- but I certainly am saying that no child is just born with genes like theirs unless there was exposure to something during pregnancy.

I also do love- not- how they pup every one up with ‘autism is caused by genes’ when they have this;

“Found in less than 1% of individuals with ASD. But this mutation alone isn’t the final word on an autistic diagnosis. Some people with the 16p11.2 deletion or duplication have no or few autistic symptoms”

So in short normal speak: you have squat. No wait, in fact, you have even more questions like why does this make sense to warrior parents and not you guys

“And many rare variants associated with autism present schizophrenic, epileptic or bipolar symptoms instead,”

Hmmm maybe they have the secret recipe? No I think they have just been doing a better job than you guys with far, far less money than you have at your fingertips. They know that autism and the above are not strictly psychiatric disorders, they know that these are things that can affect the whole body and that these are things that you are not simply ‘just born with’.

It’s actually quite sad when you think about it, all these people, families, loved ones told that this is the way things are and there is nothing that can be changed. Now we know that it is possible to have hope, that we can make lives better for these people. Take the ‘Gardisil Girls’ for example, there seemed to be no hope and yet when treated for the cause- or as much as we know at this point- these girls get better. The same type of treatment that is helping thousands of children with autism and that can help thousands more.

This is a false hope “A microarray screening for CNVs pinpointed the probable genetic basis for Lily’s autism”… the beginning of the article mentions this little girl as though they were going to reveal the secret to this genetic test that would diagnose at birth, yet now with proper wording you see that it is all just an illusion. They are hoping to come across one child –or group of children- that will unlock it all for them and we know that isn’t going to happen. These children have different causes and are each affected by so, differently and to such extremes it is hard to categorize them under the same diagnosis. One thing stands ever simply though. There is a cause. In this day to continue to doubt that is to pull the blinds shut and let the world move on without you; because we are. Children are recovering. They are not cured, because we can only do so much and we don’t have the money to research this properly. We can only continue our work while we watch millions spent on areas of research that are not helping a single child or family. Not one. Not ever.

And you wonder while all the warriors are pissed off.

“Despite extensive data collection and genomic screening, these microarrays can only identify an associated genetic abnormality in 8–25% of known clinical cases of autism, depending on whom you ask”

So even if we take their highest calculation of 25%, we still have that amount of children with a genetic abnormality that does not point to autism because this abnormality exists in other diagnoses and also regular everyday people. Still let’s throw them a bone and say good job, pat on the back for you. You took $1,500 from this family all to either confirm there suspicions, get tested earlier for therapies or….what? What treatment can you put together from this information? Earlier therapy, sure that’s a good thing I cannot disagree with however, even with those few extra months or years of therapy, you are only going to get so far. What these people aren’t saying out loud is that this test is not foolproof. Imagine taking your baby in, spending this money and getting back a positive result only, your child doesn’t have autism. Maybe there is no harm in that situation, but imagine the time and money spent, not to mention what impact this or any type of diagnosis has on a child. Then what of the other 75% that may be tested and will be told that their child is fine, only to later receive a diagnosis of autism.

I have to note that this article is truly annoying in that they keep relating to finding these ‘genes’ as the cause.
“But we’re still left with 75% of kids who still have an unknown cause.” No correction, you are STILL left with 100% of kids with an unknown cause and 25% of children that have similar gene abnormalities, which may or may not be related to autism.

“Despite the relatively low diagnostic yield, CNV-probing chromosomal microarrays are the recommended genetic test for autism by the American Society of Human Genetics and the Boston-based Autism Consortium”

Of course they are what else do you have? After how many years and how many billions of dollars, what have you come up with? After say ten years and possibly a million dollars –I am estimating extremely high- parents and others have come up with treatment plans and centers that are actually giving kids back their lives. – In a functional respect- They have also started centers for therapies, groups and so many things that actually help.

I’m so glad that they mentioned Fragile X in here because it’s another hot button issue for me. A gene doesn’t spontaneously break; I’ve talked to parents of children who have been diagnosed with Fragile X after a vaccine reaction. Same story; healthy child, meets milestones then regression day after vaccines, only this time it shows on a test as Fragile X. Saying that Fragile X is the cause is again, absurd. What happened to this gene and other genes is an end result. Our genes reflect our state and are impacted by such. Saying that this is the cause leads people to think ‘oh its genes, nothing we can do’ when that is not true. These kids could actually be getting treatment that would make their lives easier and instead they are basically left in their own world and struggling when it doesn’t have to be that way.

“Most of the time, mutations associated with autism are formed de novo in the autistic person.”

I would love to see where they got this from and until I do, I call BS on this. If this were true to the degree that they are stating it, then there would already be prenatal testing and autism wouldn’t be such a hot topic as it is.

Thinking that it is strictly genes is very detrimental to families. There will be few families willing to have another child based on the information being spat and the risk of inheritable autism. The whole family is missing out when it does not have to be so. I took what I know about autism –my sons specifically- and I made a prevention plan when I got pregnant again. My daughter doesn’t have autism and maybe it is just a coincidence, but apparently so are children dying 30min after receiving a vaccine. Who am I to claim truth when I have no money to do research to back up my claims, yet neither do they. Even ground for now I guess, let’s move on.

“Even at the end of the day, the complete genome sequences of 10,000 autistic diagnoses still won’t be able to predict definitively what the detailed clinical outcome will or won’t be,” says Scherer. For that reason, experts emphasize the necessary role of clinical geneticists, like Schaaf, to help interpret the data and make it clear that genes aren’t the be-all and end-all”

*Applause* And even if it was 100% foolproof, it still would not help us with prevention or treatment. It still will not help these children or their families

Finding the cause in genes in order to diagnose earlier or prenatally; is a waste of time, money and resources

We need to know the cause in order to find the cure. We need to stop looking at everything but the obvious.

Let’s open the box and see what’s inside

Waking up or Watching Children Fade

…..with 21 percent of respondents saying they believe autism is linked to vaccines

Hmmm gee, I wonder why that is? Could it be all that “misinformation” that we are spreading far and wide? Alas, I don’t think its people ‘waking up’. Instead it’s purely experience; people watching children ‘change’ after receiving a round of vaccines.  Though there are alot cases where the child is obviously exhibiting signs of a reaction to vaccines, the parent is either unaware or adamantly against the idea that vaccines could’ve done anything wrong.

There’s a bunch of tiny but very significant things that need to be realized by everyone; especially the above.  The most basic thing to understand is that damage from/a reaction to vaccines is at the base, a chemical and/or immune system reaction. These types of reactions, while very similar, affect everyone differently. (I’m currently working on a project to show this-more in the future, promise) An easy example would be the gut/brain/opiate response/leaky gut/blah blah blah. I’m speculating here so don’t all bounce off the walls with your loud speaker *cough*caps lock*cough* squawking for links to it all. They’re made up, it’s an example. Okay, that clear let’s get to it then. We have 1,000 kids with autism. 76% of those kids have ‘gut issues’ which is 760 kids. Now only 10% of those kids experience just gut damage without the corresponding ‘opiate receptor damage’ which is 76 kids. The other 684 kids have gut damage + opiate receptor damage. While the remaining 34% will be divided with some children having just opiate receptor damage but no gut damage and a few may have neither. But all have autism and all more than likely had a reaction to vaccines or by ‘similar means’. Did you get the point though? A standard study would only show 760 out of 1,000 kids have various gut issues. That’s it, they don’t look for opioids and I’m not sure if they have the capabilities – or the drive – to check if these kids have damage to that part of the brain. Without both occurring at once and being measured, we wouldn’t even have a clue. It is possible to do a urine test that would show high opiate levels if this issue exists. The problem can arise though if you are already starting the appropriate diet. You would have to feed your child opiate containing foods in order to get an accurate measure. It’s worth it to test before you start but in my opinion, if you’ve already started treatment measures then don’t go back on what is already working and know that your child may not suffer from both and that should be some relief because the treatment involves getting rid of two of the most common foods.

Every kids reacts differently and in some cases the subsequent damage is not able to be seen. So when I hear the words “well my child has all their vaccines and is fine” I cringe, ………  just a little. Just because your child is strong enough, lucky enough, or not damaged to a visible degree, does not in any way prove that vaccines are safe. You could take a bottle of sleeping pills and die. I could do the same and live. On your terms it would be concluded; Therefore it is completely safe to take a bottle of pills. No side effects whatsoever.

Here’s a smack my head, drag my hand down my face statement. “My child never reacted to a vaccine” says the parent of a child……who has autism. The other closely following “I saw signs at birth/before vaccines/knew in the womb. Yes I make fun, because it is utterly ridiculous to some degree. Don’t all jump at me now; I’m sure there are legit cases of children ‘born with autism’ but I do dispute that it is a very small number. I am seriously curious though, as to what parents believe they saw in this regard and of course I have a few things to say about it myself. But that’s a whole other post in itself (I’m never going to finish the darn IOM report)

What also doesn’t help is that even though we follow the ‘recommended’ schedule and get vaccinated for the same diseases; it isn’t the same vaccines. If you don’t already know, vaccines are not produced by doctors, the CDC or ‘health care professionals’; they are a product made by companies, several in fact. So I ask everyone who has had a vaccine:

Do you know which ones you’ve gotten?

Which company they came from?

Does your doctor?

We aren’t tracking any of this like we should be. We aren’t even properly tracking reactions, let alone knowing which vaccine caused it. We barely know who is vaccinated or not and we have people administering these vaccines that are highly unqualified to do so. When they’re giving out flu shots at public places like Walgreens, you know something is very, very wrong.

How many of you receive any type of verbal information about vaccines, besides “it fights this disease, this s the only way to prevent said disease, side effects; probably get a fever and be sore in the arm”?

How many have received written information?

How many are made to sit for 15min to monitor for an allergic or otherwise reaction?

Do you know the signs of a vaccine reaction?

Does your doctor?

Do you or your doctor know what is in a vaccine?

Do you know what happens if a vaccine vial, were to break in the doctor’s office……. ok I can’t expect people to know that one, but seriously unless you spend alot of time looking into it; how many of those can you honestly answer right now?

So of course it’s all just misinformation, anti vaxxers yadda yadda yadda. Wow, you must have low expectations of people to honestly believe that peanut gallery bull. I highly doubt that people are just going to suddenly change their minds one day because they read an article somewhere. Something of this nature has to either be enforced into your life or some ‘shocking’ incident has to happen.

People aren’t waking up, they are seeing it. Maybe we’re paying attention more or quite possibly what is happening is occurring more drastically. Look at those on the spectrum over time and see that while each generation does have its severe cases, the general population was affected to a lesser degree than kids today. How many more cases of obvious regression are we now seeing? Give it a few years and the schools will be flooded. We are already seeing it; teachers aren’t ready, there aren’t enough supports in place, we have been overwhelmed for years now, with places housing adults on the spectrum and these places are barely holding it together. There’s one down the street from me that is trying desperately to get more funding just to repair the place. They have no money to do anything with the residents so they spend their time sitting outside on the porch when it’s nice out.

This is the solution; stick them somewhere and let them live and be happy. Now how many threads have I read this on; let them be, don’t fret over treatment and cause. Give them your attention and let them do as they may and then stick them in the worst place possible when they grow up and live a life of what? Of nothing, of doing freely and just existing – barely – instead of actually living; it’s crap, plain and simple.

This article just goes to show how unprepared they are and I am thankful for that 21% who are at least a step ahead by making the connection. With lack of everything and the only light seeming to be with the few that still put on the battle gear every morning, we are in for some work; since we are the ones doing it all. We can’t hope for ‘professionals’ to get on board enough to take over, hell we are still doing battles when the war should not only be going, but fought and over with already.

Alas we are broke, without time and too busy fighting amongst each other to band together enough, to really be heard.

Yet every day the waves of people seem to get bigger and the impact greater. The voices are getting louder and those warriors we all know and love are realizing that; it really is up to us to fix this. That one study to prove or disprove is not going to happen. Seriously if jenny, holly and the like got together they could do it in a cinch.

That’s the thing about autism. Everyone is off in the corner doing their own thing.

Warriors Blacklisted

I try so hard to stick with articles and talk about issues in the autism community, without letting things become personal. Even after this post I’ll still be able to say that, but less heartily as I once could. In a way this is being taken personally, even though none of this is directed at me specifically, nor do I think I have even made it on; yet that wouldn’t matter. This is being directed at parents, people trying to treat autism and basically anyone who does not agree with what ‘self-proclaimed’ aspies say autism is. I’m not just talking about this Blacklist, this has been going on for some time and will continue to do so. I hold little hope for it being resolved anytime soon but I know there is common ground between us and real adults on the spectrum. I know this may seem harsh to just divide it to these two groups but that is what I’m discussing at this moment, so that is the division. This isn’t about vaccines…not really.

So you have one group; parents of children with autism who are trying to ‘cure/heal/treat’, whatever word is popular these days. Vocal, sometimes angry, mostly well-knowledged and completely well meaning; they are warriors, in all sense of the word.

Then we have the other – not limited to- self diagnosed aspies. They feel that by looking for a ‘cure’ or treating or even researching in the wrong directions; we are trying to create a pre-natal test, wipe them out, get rid of autistics everywhere and on and on.

No other ‘disability group’ have I seen that has this kind of drama; it’s like being back in highschool ( not like I was there most of the time anyway) but I sure as hell knew about the mentality that happens when you put too any people together for a length of time. So why is this so different than other groups. Why aren’t people with MS, cancer or diabetes fighting amongst each other?

How about a different perspective, we’ll shift the same type of disagreement over to the diabetes group. Type 1’S and type 2’s are going at it, one believes that they are the ‘true’ diabetic while the other is just ‘diabetic symptoms’ or ‘acquired diabetes’. One believes that diabetes is purely genetic (even after years of researching –and billions of wasted $’s- has shown this to be untrue), while the other believes that something is causing diabetes to happen and is screaming to the greater health care charges to look into it (they are even willing to provide as much information as possible and to participate in any tests required). One side is proud to be diabetic while the other just wants to be rid of all these horrible health issues accompanied with diabetes and live a life like they are supposed to – free to run, play and eat how they want-. Now suddenly the ‘proud’ ones think the ‘ill’ ones want to wipe them out, to take away their diabetes; by force if necessary.

See, isn’t that ridiculous? Yes I am making a mockery out of this because it is stupidity, plain and simple. Now we are wasting time dealing with this crap, creating groups, trying to shut down discriminating pages; yes we come together even more after one of these bouts, connecting to new people and all that but our energy is taken away from more productive means. Then there is the part causing me to become highly defensive regarding my children. See I’m a momma bear type, you get in my face or provoke me and I’ll deal with you in as light a manner as possible. Touch or offend my cubs and the oversized paws with huge skin shredding claws come out. Not a pretty picture and usually it doesn’t have any effect on me at all since people generally don’t say squat about my kids let alone offensive remarks. I’m not alone in this, other moms and dads are the same way and we would fight until our last breath for our child.

So there comes a point when enough is enough. We’ve been called crazy for believing we could treat our children, called horrible parents because we search for answers, been told that our children should be taken away, that they should be felt bad for, that they deserve better and that we are monsters, bullies, ‘like nazis’ and that we wish to eradicate the world of those with autism. All of them and also kill all babies that will possibly have autism, that will be tested by some imaginary means. Yes, I am trying to make a mockery of this in hopes that it quells my anger, because frankly; I’m right pissed off. This is no longer just some people who are so attached to the ‘my child was born this way and I would never change it, shame on you for thinking you should and trying to find a cure’, no this is becoming an outright attack on parents who are using all their energy to not only help their own but also help others as well as fight the system that is hindering these kids more than it’s helping.

You want it in black and white, here you go

  • These parents spend all their child’s waking hours working to earn money and/or caring and helping their children
  • They sacrifice their own time and luxuries to make sure that their children are living happy healthy lives
  • These children are not neglected nor are they under duress and they certainly are not being punished for stimming or other behaviours deemed weird by the general public
  • When these children are settled, sleeping, at school or busy with a lone activity; these parents spend that time researching, learning, helping and fighting for things that would benefit their children
  • They end up possibly losing friends, family and partners on their journey but they do it for the betterment of their kids
  • They spend countless hours worrying, planning and trying to figure out the puzzle
  • They also sit outside their kids bedroom door at night, marvelling over the profoundness of these kids, of the funny quirks, the courage and the love they have to give

These are not monsters doing experiments on their children. These are not people looking for some way to rid the world of all things autism. They are just trying to make their children healthy. Then the whole prenatal autism test. Seriously, there is no such thing and I highly doubt that there ever will be. You can keep going around trying to tell everyone that it is hereditary, that it’s in the genes but you have absolutely nothing to back that up. Let’s see, they’ve been looking at genes in regards to autism for what 30+ years now? Could be wrong; may only be twenty. What have they found, really? Over 100+ different combinations found only in those with autism. Hmmm, well that’s it folks, problem is solved. You heard it, all genes that are passed down and no way we, can do anything about it. So this test is, where exactly? Oh that’s right, you don’t know the specific gene, gene sequence or chromosome that is affected and therefore you cannot produce a test. But if by believing you that it is in fact hereditary, we should have no problem creating a test prenatally, since by your definition; we can already test now right? Of course this doesn’t make any sense. If autism was truly ‘passed down through generations’ we would have found ‘the markers’ by now. What’s the point in the end anyway, we don’t have the means to treat genes specifically.

Then again, everyone always misses the simple point; genes are the end result. They are like the crime scene; you can see how the victim was murdered, what surrounding areas were affected by the scuffle that ensued and yet; without the murder weapon, you cannot accurately solve the crime. Genes are affected by numerous things. They are turned off, on, can mutate and all that but they do not do it on their own. Your genes do not just ‘spontaneously mutate’ but rather are caused to do so. An outside force affects these genes and by looking at genes we can merely figure out which areas are being affected. We do not have the means to do more than that. We will never be able to create a prenatal test for autism like we have for DS. This is just not possible.

However, an after test is entirely possible but would be very flawed since not everyone under the umbrella is affected by means similar enough to measure; that I know of. There are a few tests that have been around; metal testing – all children I’ve heard of being tested, have tested high. I don’t know any adults that have had themselves tested. There is also a urine test developed – not sure if it’s widely used yet or not- that measures opiate levels and other levels – the drawback is that not every child with autism has the same problem with opiate foods and thus some will test negative and still undoubtably have autism. This isn’t even taking into consideration regression cases; I’m extremely curious as to how these children would test before and after regression. Of course the only recognized test for autism is based solely on behaviour and it will continue to be as long as people like those I mentioned earlier continue to chastise parents for seeking answers and trying to help.

It’s very frustrating to watch your child in pain and then have someone claiming to have Aspergers tell you how wonderful autism is, what great abilities it brings and how these health problems are just made up bologney that disgruntled parents made up. How autism is really just evolution and that all the super smart, slightly lonerish people have it, like Einstein, Bill Gates and the like. Yes sometimes parents can become overwhelmed by their situations and the main reason is the lack of support they receive because of these concepts being spewed by people who are literally self diagnosing themselves. I enjoy talking to people that really have Aspergers. We want alot of the same things and fight for a better understanding or what autism is and how people with autism are just that….people. I love hearing the firsthand experience of it and learning more about how my son may interpret things. These people also know that autism isn’t all flowers, neon lights and super brainiac abilities. Leave the sparkles and beads for the gay/lesbian parades and really look at the situation. What adults with Aspergers are experiencing IS different from what are children are. There are areas that cross over similarily but the children today seem to be affected worse or maybe the adults bodies have adapted over time. We don’t know and will not know as long as; individuals self diagnosing themselves, to be part of the smart people with abilities, that are more evolved than ‘neurotypical’ people, keep falsely crying bully every time a parent says autism is treatable.

That’s the gist anyway. Now there are ‘mobs’ and new classes of bullies. People are again reporting others because some disgruntled adult tells them that these individuals wish death on those with autism or some other similar, blatant lie. Then parents end up having CAS/CPS called or their homes are stalked, vandalized and just when does it end?

Is research being misguided because people still believe that it is strictly a brain or psychological problem? Is this in fighting distracting us from pushing for better laws, funding and resources for those with autism? Are children missing out on treatment because their parents are made to believe that there is absolutely no hope and that anyone who tries to give them, even a sliver of it; is made to look like a hater of those with autism, bent on trying to change their personalities, essentially take away who they are? Yes to all on many more. This isn’t just highschool name calling or some unconsequencial debating. This is attacking, detouring and ultimately holding us back more and more. Yes I could make it on the new list if I wanted to but it is already enough that I feel the need to waste my energy calling attention to this.

There of course is always a positive to negatives like this. If you are a parent of a child on the spectrum and are trying to help said child. This list will provide you with names of similar minded people, others who fight with every ounce they have to make the world a better place for their children and they are a valuble resource. So visit the page, add everyone on that list, report it then move on.

In the autism community there is always regression, it’s our ability to move past these that makes us the warriors that we are so aptly named

Going further into the IOM report

Before we dive right into the preface, let’s count how many times the word rare is used. I count seven. Pay attention to this, it is a very sly way of downplaying things. If you haven’t kept up here it is simply; one side states that vaccines do cause reactions but very rarely, so the benefit outweighs the risk and the other side is asking for this issue to be looked at properly because what they are looking at shows, that adverse reactions are more common than we had past thought.

Since it is still in question –even after reading through this report- this is really a perfect example of how “they” are trying to constantly push that all this is rare, like winning the lottery. You may hear about it but the likelyhood of it ever happening to you is pretty slim.

 

Now there’s a lot I could nitpick about enough to fill up a couple of posts but instead I’ll just skim over them since we’ve all probably heard them several times already and we do have 667 pages to cover.

Thankfully we have a bullet system 😉

  • Vaccines being the leading cause of dwindling outbreaks/us not seeing disease much anymore is in question
  • Because we don’t see these outbreak of disease anymore and aren’t afraid of them is NOT the reason the majority choose to not vaccinate. This myth is also passed around very frequently
  • This article reviewed 12,000 peer-reviewed articles, they did not conduct any new research
    • It is interesting to note that this comes out shortly after a similar review of articles about vaccine safety, only they came to quite the opposite conclusion
    • “….some issues simply cannot be resolved with currently available epidemiologic data…in addition even very large epidemiologic studies may not detect or rule out rare events”
      • We know this already, have been saying it for years and yet the methods have not changed
      • “Some adverse events caused by vaccines are also caused by the natural infection
        • Please keep this in the back of your mind, it is very important. I’m working on a post for it but for now we should note that this only shows that some adverse events will go undetected.
        • “Alleged adverse effects that appear to be immune mediated, as many of them are, are more challenging, in part because the biology is not completely understood”
          • They proceed to go on about pre-existing conditions. These conditions that may have no ill effect on the individual if they were not vaccinated.

What you really get from this preface is that the methods for investigating adverse reaction claims cannot usually determine whether the reaction is from the vaccine or not. Add to the fact that most of the population isn’t even aware that you can report these reactions and that most doctors outwardly dismiss reaction claims and you get a whole different idea than the previous news article about this report is stating. This is not reassuring for the very rare reaction claims. It will be interesting to see if they take any action after this has made the rounds. We need better monitoring better investigation methods and better safety protocols before injection.

 

If 100,000 kids get a particular vaccine and 1,000 have reactions, the current methods would most likely determine that one or less had an actual reaction. Why? Because 300 had a pre-existing condition that without that vaccine no one would have known about or be affect by, 300 did not have enough data so was only concluded as correlation not causation and the remaining will be dismissed because it wasn’t that particular vaccine that caused the reaction but rather the accumulation of vaccine up till that point, with this last set showing visible reaction.

 

Like it or not, this is our current situation. Although the news about this report is only saying that this is a reassurance to those who are concerned for vaccine safety. So far I don’t find this reassuring at all.