Are people sick of hearing about autism yet? I’ve been at this almost 5yrs now and still I couldn’t tire from it, then again I’m not really given that option am I. Sure those of you that aren’t affected by autism in some way (not many of those left I’m sure) are wishing for people to shut up about it already, more so I’m presuming that people are sick and tired of hearing about vaccines. Oh how I wish we could just shut up and that there was no need to be swamped by these things at every corner but it’s just not happening. So who is at fault? CDC for sticking to their ‘it’s genes, better diagnosing and more awareness’, giants like Autism Speaks that bring in millions and ignore families affected or the health system for continuously ignoring the problem.
There is a light though and it’s with all those warriors screaming and pushing for answers, solutions and action. These people eat studies for breakfast, perform therapies in their home as good as or better than the trained ones making the big $$$ and are ready for the next moment to arise when they can make some big change. Things may seem to die down a bit in the autism world but these people are constantly working, trying to change an unchecked system that has become detrimental not only to these children but to everyone.
Days like today show how on top of things these people are. First off I’d like to say that we know what the true numbers really are, if you hunt around you can find a few studies that look into more current autism rates and can give you an average estimate of 1 in 34 children. Not 1 in 34 boys, but 1 in 34 Children. But for now we have to look at published findings. Everyone (within the circle) was well aware of the CDC putting out a study to give a new autism incidence number. The thing about these people is that they know how to read studies and have probably been through hundreds already. It’s not surprising that this was easily torn apart, the study was complete bullshit and if anything was a slap in the face to families with autism everywhere. So all day a flood of information poured into the network concerning this and I cannot commend these people enough for their hard work and dedication but I am still left to ask this horrible question…..is it enough?
Is the message really getting out there to the people it should or are we just passing the information around to people who already know? I’m sure some are reached; I can’t say that all this effort is in vain but I think we really need to start thinking bigger. There really are a lot of people in this, just today an idea was brought into fruition in a matter of hours and here is one of the results of that. I could scroll through pages of people posting pictures of their children and it has only reached a small group of people. Looking at not just this but also previous endeavours, shows not only the amount of people affected and willing to speak out but also the sheer amount of determination in these people to make change.
So yes I can admit that the message is getting out there but it isn’t fast enough. 1 in 88 officially and that number is; children over 8, only taken from 14 states and the continued falsity that this is genetic and because of better diagnosing and blah blah aren’t you all sick of it already? I’m speaking to you autism families, autism fighters, aren’t you tired? An understate to say the least I know. How many hours spent researching, debating, learning therapies, learning treatments and fighting for a better life for these kids have been spent from you all? All for what, so that most still have to pay out the ass for therapies, so that treatments that actually work are not covered or even being considered, so that more parents have to hear ‘your child will never speak’ or ‘you will have to institutionalize’ or ‘your child will never feel any emotion for you’ or ‘the research has already been done’ when it’s all just not true!
We need to think bigger, grab people’s attention, make a huge impact and inform people, fully inform them. It would be nice if doctors knew the signs of a vaccine reaction and reported it every time, unfortunately this isn’t just going to happen. We need to inform the everyday individual and we need to do it oldskool J
Now hear me out before making any assumptions please.
Although we are big enough, we just cannot drop our lives to do some huge rally to demand change and even that may not be enough. With the time factor in mind I think a more Guerrilla approach is needed and would add to the impact already being made in a huge way. We can’t make time for change but we can take the time we are already using to do it.
Confused yet? I am getting to the point I swear. So there are a few things the vast majority of us all do; groceries, shopping, school, doctor, craiglist/kijiji, read the paper, go to work, just plain old walk outside. Yes the internet is an amazing resource for information but have we seriously forgotten about the old ways? Where are the days of posters on poles, notices at the corner store and flyers in mailboxes? I can’t say it’s all lost because those No Shots, No School, Not True, billboards are amazing and I do know of a few people who hand out info sheets but still it’s not big enough. So what if all of us got together and put out brochures, cards, flyers, take out ads to put information in and put things where everyday people can see. It is an easy endeavour to tack up a poster on the corkboard when visiting your local grocery store, even bigger would be dropping off a pile at the local doctor’s office or hospital waiting room. I have a few ideas on some things but would really love any input or ideas from others. Our kids aren’t getting any younger and neither are we, we can’t wait for change to happen or for someone else to do it, we need to step it up and get the message out there. We have all this information that isn’t getting out there. I could walk up to 100 people in town and none of them will know the autism numbers, nor will they know it is treatable. Average people need to know the precautions they can take, they need to know that all is not lost, they need to know about organizations like autism speaks and above all they need to know what mainstream isn’t telling them.
So please consider this idea and hopefully in the near future I’ll be posting happy details about the project. Until then, live long and prosper ….and to you warriors, rest easy tonight, you all have done an amazing job.