I was cruising around the internet, surfing through Autism blogs and came across this.
I’m all for individuals/groups on the spectrum speaking out. To be honest I encourage it, since I see how much my son struggles and how hard he wishes to communicate on a higher level than he does. I’m concerned though, that some “Aspie Adults” are taking things a little too personally and a little too far. Who cares though right? Not hurting anybody.
I can’t actually agree with that. I do think it is doing some harm, in the way that it holds back research and prevents further progress from our ASD children that are way more severe than themselves.
We know nowadays that “Autism” is not simply a genetic disorder, it is not “just something that happens” or re-wiring with the brain at birth and also, that it affects more than just the brain. We also know certain areas that research should go, in order to help those already on the spectrum and also with prevention of the newly born. I agree with lots of things these “Aspie adults” are saying. There should be more acceptance of those on the spectrum, their “rights” should not be lessened or taken away because of their disability, there should be more help available to them then there is now and there should be less discrimination against them in the workplace, school and just generally out in public. These are things that everyone affected by autism in some way is fighting for as well. See, common ground. What divides us then, to the point that everyone affected by autism are fighting amongst each other?
All around the autism community-and other communities- are supporters, trolls, attackers, fence sitters and people looking for help or to help others.
This is where the supporters, attackers and trolls come into play. I did a bit of history – message/blog/thread- checking on the blog writer and it really gives this post a whole new light. The very first paragraph written in this post is clearly an attack, more of a na na na na na dare you to say something about me now piece. The writer goes on to explain how they want peace and harmony and wish to just move on and help people. Yet in almost the same sentence the writer goes on to criticize their “bullies and stalkers”. This is not moving on. The writer goes on to accuse others for things that the writer is also known to do. So what does this have to do with preventing progress?
For starters, the time that is being taken out to go back and forth arguing between each other is time that could be spent actually advocating. –I have a very high standard for someone who wants to call themselves an advocate for something. This is part of my dislike for autism speaks. As well, this writer had brought together a huge group that wished to terminate or change the name and purpose, of another group that vows to help children on the spectrum. This is not advocacy, this is not going to help change and this is slowing down progress.
I can only hope that from this point on the writer truly does move on and put more focus on her form of advocating – sharing google news alerts, playing games on facebook, begging people to report groups / other people and complaining that she is being bullied and/or this group is about me, please don’t post your links here- and maybe even work together with the ones she calls “bullies” to help fight for things they agree on.I don’t hold much hope however with this writer, since she doesn’t seem to have an opinion about anything but herself and being bullied. Thank you and have a good night